Welcome to the Team Winchell blog!

"The problem with the world is that we draw the circle of our family too small." --Mother Teresa

Thursday, January 7, 2010

good news

So much good news in the last week!

Our house in Lynn finally closed a week ago. We left the closing sad to be moving on from a huge chapter in our lives (the Lynn chapter was 11-1/2 years of our 12-1/2 year marriage), but also feeling free to move forward.

Yesterday, we signed the P&S on our future home here in West Bridgewater, a cute and sunny bungalow a mile from Jason's parents' home. We're hoping to close January 22nd! The seller bought the house to flip it, and it is completely renovated, inside and out, and nearly finished (I walked through it again today). We're so grateful to have found this house, as it will mark the first time we haven't adopted a "house project" in the purchase of a home, and at this stage in the life of our family, we are needing the freedom to attend to our children more, and our property less. It is a provision.

We've been busy in the last week, too, making new friends, and this is good, too. The boys are now receiving phone calls from friends at their new school (amused sigh). Jason and I were over two different houses for dinner last week, meeting over nine couples in those two visits. We have dinner plans with another family this weekend, while Orilus joins forty other middle schoolers from church at "Snow Camp" in New Hampshire. And even little Moriah is making friends--a little boy from the Down syndrome support group we've joined, and two girls in her mom-and-baby swim class this morning. We are so thankful to be so well-provided for in potential friendships.

There continues to be, as in your lives, much that is concerning. We need jobs that are closer to our new home. I would like to do some work this spring, even, but can't forsee commuting to Lynn with Jason and leaving our children parent-less before and after school. Orilus made a visit to Mass General yesterday for symptoms that are mystifying to us, and to his hematologist. So far, his blood counts look good, but he continues to complain of back pain and other aches daily and we are worried for him. We're waiting for more test results this week as the doctors try to figure out if his pains are from sickle cell damage, some kind of post-transplant "fritz," an autoimmune issue (his immune system still just 3-1/2 years old), or just plain growing pains.

Somehow, though, I have an increasing sense of faith. Faith that God might, after all, be paying attention to us. Faith that we might have been on to something when we gave Moriah her name as a reminder that God provides. The cliche says that when God closes a door, He opens a window. Hm. But those who told me so forgot to mention that sometimes the window only opens after you've sat in a stuffy, dark house for a long time, thinking you're alone and there's no way out. This week, though, I've found a window and through it, hope rising like a warming winter sun.

Friday, January 1, 2010

happy new year

At 4 am this morning I was in Mom and Dad Winchell's "back room," sitting near the hot coal stove to feed Moriah and watching revellers from around the world welcome the New Year. To think that almost six months have gone by since Moriah's birth, to anticipate this year as the year in which she will turn one year old...to make sense of the past and feel hope for the future, these are no small things.

I have had a very hard time in the last few months understanding why so many difficult things have happened to us. Why were we thrust back into the world of Children's Hospital, after "paying our dues" during Orilus' transplant three years ago? Why was Moriah born with a diagnosis that could cause her sickness, complications, and a decreased life span? Why, when I finally had begun to trust that I could, after all, open myself up to the scary world of "baby-hood," were my worst fears realized in a child with special needs? Why was I asked to give up so much--an on-time return from maternity leave, a happy delivery and postpartum recovery, a calm summer at home with my sons, an entire life in Lynn?

So much pain, and in the final analysis, I am finding that analysis is really little help, and no comfort.

Mostly I have passed the last months stringing one hour after another, like an amateur jewelry maker unsure if the finished piece will ever be finished, or for that matter, a piece at all. In the process, we have made many sudden and instincitve decisions. We knew we needed to retreat to a place of healing, and made a strange pilgrimage to Jason's parent's basement and pull-out couch. (Our house in Lynn finally closed this past week!). Others might marvel that cramped quarters could bring anything other than frustration, but we have found joy here. A new rhythm is emerging, one that for me includes sending the boys off to a school that delights them, moving Moriah's body in ways I've been told will improve her muscle tone, returning to workouts at a local YMCA, and looking for part-time work for the spring. Rhythms, and beaded time, passing. And my favorite Christmas gift this year--a necklace my dear friend Val gave me with a South African symbol that means "hope"--has been both an ironic mocking ("Hope in all of THIS?! You've got to be kidding?!") and a quiet strength ("Next hour, next day. Begin again.").

And mostly, I find that hope returns, even after days when I am sure it does not exist anymore, cannot possibly exist. Moriah turns over on her own (as she did twice yesterday). Jackson and Orilus take off on their bicycles for the town skating pond. Jason grabs me in a bear hug after his long commute. Dad Winchell discusses a favorite book of mine and pours my coffee. Mom Winchell tells me a story for her own motherhood that encourages me to pray and to wait. The doctor tells me that Moriah is thriving, and Orilus and Jackson's teachers tell me the same. And I feel my own heart yearn to thrive, yearn to break free of all the sadness, and sometimes, it does just that, and I am full of gratitude, and rejoice.

Two weeks ago in church my husband was surprised when an elderly woman he knew from his childhood approached me with a great big hug, tears in her eyes, and a specific word of encouragement. I can't tell you how comforting it is even to be called by name, now that I live in a town where I have yet to make good friends and am so little known. But what was more comforting was to know that her words were true, and tested, having survived her own heartache and truly awful suffering. "There is hope," she said. And I realized how sweet these words were, coming from someone who had weathered so much. And how really, they were some of the few words I trusted in these last months. And I thought, someday, I want to be that woman, the one who suffers and hopes. The one who can be trusted, because she has survived, and gone on to thrive. The one who counts her scars, knows they are not as deep as they could have been, and heals the hurt in others by virtue of her own weakness and imperfection.

Someone who can welcome a New Year. Welcome it for its scary unknowns, and certain joys. And understand that the welcoming is a radical act, a faith. A hope.