First Day of PreK!

Moriah began school today! Now that she's 3, her Early Intervention services have ended. The public school system in our town is now responsible for providing her with schooling and therapies, even in the summertime. Moriah will attend 3 weeks of summer PreK, then take a few weeks off and begin "official" PreK in the fall in an Integrated Preschool Program (half of the children are typical; half have special needs), where she'll receive speech, physical, and occupational therapies. It's an amazing program, especially for such a small town. We're delighted for her, and so proud. After a weekend with fevers of 103+ degrees and an ear infection diagnosis, we're amazed at how she pulls herself together and maintains her joy, her independence, and her motivation. Happy PreK Day, Moriah!

Portraits post-tantrum

On the day of her third birthday, Moriah ended up in time out, crying so pitifully that I couldn't help but take a few photos...

Happy 3rd birthday, Moriah

Today is Moriah's third birthday. I have been a very unfaithful blogger, my writing saved mostly for my doctoral classes, my dissertation, a handful of articles on their way to publication, and my personal journal. But today I wanted to write again, because Moriah's birthday is always for me a big and meaningful milestone.

It is afternoon here in our little bungalow. It is so quiet I can hear the rustling of the leaves of trees across the street, the chirping of robins in our yard, and the whirring of the living room ceiling fan. Moriah is asleep--she still takes naps, usually an hour or two, which may mean I have only a few minutes left of this quiet time. Jason has gone to Lowe's--what started as a pipe clog has now become a structural project (and this the day after we've returned from our 15th anniversary trip to Nantucket...does anyone else seem to suffer so soon upon return these crazy incidents that threaten to steal whatever rest and re-connection you may have gained by "being away"?). Our sons are not home, but we are. I love summers for this--the extra time Jason and I both have, because we both are not in the classroom, and the family time we can try to snatch between the busyness of managing three children with lots of needs.

It has been another remarkable year. I'm unable to blog about all that has transpired, mostly because we try so hard to protect our boys' privacy as much as we can, but we've had so much happen that has caused in me a visceral reaction, a sort-of-rejection of my own life, I'm sorry to say. I'm sure you've had these moments, too. Things so crazy, so tragic, so surprising happen, and you think, "Really?! This is really my life?!"

Even today, Moriah's third birthday, is a small example of that. We began well--Jason and I went together with Moriah in the early morning hours to a hospital about 40 minutes away for her weekly pool therapy. At 8am, we are sitting by the pool and watching the PT try to get Moriah to work. Moriah's not having it. At 8:45, we are changing Moriah, only to find poop all over her diaper and swimsuit, towel and hospital linens. Sigh. We clean her up. She throws some fits on the ride home, angry that we are driving the fuel-efficient car instead of the minivan, which means she can't watch her Elmo in the car (I find these DVD players to be both a blessing and a curse). She is angry still when we get home. She hits and throws. She sits in time out. She yells. She demands what she wants. And I look at her, I'll admit it, and I think: "Really?! This is really my kid?!" There is fear there (is she going to turn out like other kids with DS I've heard about who have significant behavioral issues, or is this just a stage?), and there is frustration, and there is weariness, and there is disgust.

And guilt, of course, because I'm a mother, and it's my daughter's birthday and I should be ENJOYING her for goodness sake! And worse: We've been away from her for 4 days on our anniversary trip (oh wait, did I already mention we went to Nantucket? Maybe because I'm thinking I should just go back...) and shouldn't missing her have lasted a heck of a lot longer than this?

But Moriah is, after all, 3. And she is her own person, that's for sure. It's sort of what you get when you have a kid, isn't it?

So I pack her into our minivan (wishing for Elmo to save me, please, from her tantrums) and take her to a local farm. We pick out peaches and blueberries and local honey, tomatoes and corn on the cob (she loves corn on the cob) and zucchini. And as I'm putting her back into the van at the end of our farm trip, and she is arching her back in such a way that I really think I might drop her, because she is angry to leave the very stroller she didn't even want in the first place, I take a deep breath and think, "This is my life." I give her a farm-fresh peach, wiped off on my shirt, and am thankful when she passes it to me a few minutes later. We eat it, back and forth, on the way home, and for a few moments, we have quiet, and connection.

Lots of people like to tell me how amazing Moriah is. How adorable. How smile-y. How happy. How loving. How friendly. How hug-gy. How kiss-y. She is all those things. And sometimes people will talk about Moriah's purpose in life, how she has much to teach us, how maybe the point is not what she has left to learn, but what we can learn from her.

This is not always an easy perspective for me, the one who is usually tasked with coordinating her educational and medical care. And I'm skeptical of people who want to whitewash the world of special needs, and gloss over the very real grief we parents experienced--and sometimes, still do--about the things our kids are missing, or will miss.

But watching Moriah eat a peach in the rear view mirror today, I'm giving in. This is my life, wild and crazy and way too full. I choose to be here, in it, and to accept it for what it is (which is, mostly, totally nuts and not at all what I thought it would be when I started this marriage 15 years ago). And in honor of Moriah's third birthday, I'm going to say YES to all the things she is teaching me, because I'm learning a lot from her, even cranky-crazy her.

In fact, here are a handful of things I'm learning from Moriah:

1. When eating, ENJOY food. Smack your lips. Say "Mmmm!" with a satisfied smile. Slurp your drink. Understand that food is food, but it's also nourishment and a sign that someone loves you, to care for you so well. Eat heartily.

2. When you have a chance to move, do it with abandon. Spin. Hang upside down. Throw out your arms when you run. Dance with your head, your hands, your hips, and your legs. And when therapists tell you you're not doing walking "quite right," walk anyway and trust that these things figure themselves out in time.

3. Sing to most songs, especially when you can't say the words, or don't know them. Sing anyway, and whenever possible, add motions.

4. Give hugs liberally.

5. Laugh everyday for no reason. And get other people to do the same. (Making "scary face" is a really good way to do this, as is getting right into someone's face and just giggling).

6. Cry when you are sad. Cry, and ask for a hug, and when it passes, be done with it, and move on.

7. Sit next to a bookshelf everyday and read something.

8. Make some drama. Why not?

9. Make art out of whatever you have on hand (though we wish Moriah wouldn't do so with poop quite so much). In any case, if there isn't a lot of beauty around, or you spy a blank wall or a white sheet of paper, realize it can be improved, and get to it.

10. Wear a swimsuit to bed (see #9 about poop art).

11. Pray each evening, and pray only thank-yous. When you're finished, shout "Amen!" to express to God that you are really, really thankful.

12. Be convinced you can do way more than you can. For example, if your brothers are playing basketball, be very sure you can insert yourself into their game. Run onto the court and try to dribble the ball. Don't worry, eventually someone will pick you up, lower the hoop, and lift you to make that dunk. What you don't have in skill, make up for with faith, confidence, and curiosity.

13. Be an optimist.

14. When someone is crying, pat them on the back and offer a hug. Ditto for friends who are angry and having tantrums.

15. Share. Always.

16. It is really, really hard to say you're sorry. But you always feel better afterwards.

17. Be Jason's biggest cheerleader and fan...every man deserves a daughter who reminds her mom of this one.

18. Kiss yourself in the mirror every day, because really, are you every going to be any more beautiful than you are right now?

19. Be totally imperfect, and totally okay with it. Sometimes, when someone is saying how cute you are, blow them a haughty raspberry. Or, when you are in the middle of a tantrum, give a hug. That way, people around you remember you are both amazing and completely crazy.

20. Be fully present to your life. If it hurts, cry. If you don't like it, say so. If you need something, ask. If it's funny, laugh. No matter what, be happy that you are here, because too much has conspired to make it otherwise, and you are a lucky girl, and your life is a gift and full of many graces.

Happy birthday to my girlfriend. You are turning out to be one heck of an amazing, precious gift.

I love you.
Mom
July 13, 2009